I AM DEBATING.
Debating with myself.
On what, you ask?
Whether or not I should share this here.
For d a y s I have been avoiding the subject - for several reasons -
but tonight I feel like I should explain a few things.
One reason I hesitate is because I know how much people are suffering right now.
Several good folks are in our constant thoughts and prayers.
My concern in sharing is that someone may feel that I am complaining and I don't want to come across that way, at all.
The struggles I am dealing with are minimal compared to what they could be.
But what I do have going on is serious, serious enough that Jon and I have several concerns.
Last week, I went to see the doctor .
My appointment was in the late afternoon so I didn't fast.
Since I wasn't fasting, I was asked to come back in order to get blood drawn.
My week was busy and I had the dry needling procedure done so I couldn't go back in for the lab-work for several days.
I determined that Friday would be the day.
Friday morning came and I woke up feeling terrible. I did not want to fast and go have blood drawn.
Thinking to myself that it could just wait until the next week, I decided to skip it and rest.
Just as soon as I had decided to "skip it" I had a strong impression that I needed to go in and get it done - sooner rather than later.
Long ago - at an early age - I learned to follow those 'feelings' or 'impressions' always, and immediately.
So, that is what I did.
I left right away for the lab.
I didn't even change out of my sweats - that's a big deal for me!
(I always dress as nicely as possible before going out).
Side-note: a sweet little encounter happened there.
As I walked in through the 2nd set of double doors to the medical center, I turned slightly and noticed a lady trying to juggle many things in her hands and arms while dangling a banana peel off of one finger.
We've all been there, haven't we?
Knowing it would be hard for her to negotiate the doors and her cumbersome load, I turned, went back outside and opened the doors for her.
She was very thankful and as we entered, I noticed she was wearing scrubs.
So, I asked her if she could tell me where the lab was located, she pointed me in the right direction and off I went.
As I was signing in at the lab (while telling the nice receptionist there how much I liked her hair), in walked the banana peel girl.
We had a little laugh and I opened the door for her once again.
When it was my turn to have my blood drawn, guess who came to get me?
Yes, the banana peel girl.
As I got up to go with her, she opened the door for me and said, "Now it's my turn to open the door for YOU!"
We laughed a little at that. :)
She was the kindest phlebotomist I have ever had.
And my veins were not giving blood easily that day - but she never hurt me!
Side-note moral: It doesn't ever hurt to open doors for people. :)
Pretty soon after I had my blood drawn, I had a call from the doctor. She felt it was urgent that I speak with her.
Not all of my labs were back yet but she had one result that had been sent to her urgently.
She talked to me about my blood level. How dangerously low it is. How worried she is for me, etc.
We determined by my symptoms that I have been seriously low for a long time.
Probably a very long time, I have just adapted to it.
She was concerned about my organs and how they may be damaged by this, she also began talking about transfusion.
She told me what I needed to pick up from the pharmacy immediately.
She gave me her cell phone number and asked me to call her over the weekend if I needed to go to the ER or had any trouble whatsoever.
She said a lot of things to me, some of them were very complimentary, which was really nice given the rest of it was a little scary.
She gave me my stats. Asked me to take extra caution and care; not to get into an accident, not to fall again, etc.
But my head was swimming...transfusion? Damaged organs? ER?
How low could my blood be?
Apparently very, very low.
My stats were sent via text to my sis, who is my lab genius, and she was very concerned and let me know that if I were in her hospital, I would be getting an immediate transfusion.
That was echoed by my nurse friends in other hospitals as well.
On Monday morning the doc called to tell me she was getting me in to see a specialist.
This specialist is like the HULK of all doctors.
He is a hematologist, oncologist, internal medicine doctor, and has a cancer center.
He told me I am running on half the amount of blood that I should be.
Half.
Oh, that low!
He talked through some of the possible reasons for such a great amount of blood loss.
He did rule out Lupus related blood loss immediately, stating that I would have more blood than I do now if it were Lupus related.
We went over treatment, depending on the reason for the loss,
and whether or not I will be able to rebuild my blood on my own.
We talked about the pros and cons of a transfusion but he would like to know what is happening to the blood before we do anything else. Of course.
And he decided he needed to run his own tests in order to determine how to best treat me.
Which meant another blood draw.
5 more vials of blood.
Back to banana peel girl. :)
(So glad we are friends now, I will be seeing a lot of her!)
As I wait to find out more, I have to be careful, very careful.
I haven't been able to drive, and even when I am a little more clear headed and feel that I might be able to drive a little, I am worried. If I were to pass out or if I were not as alert as I should be and I caused harm to someone else, I would not be able to live with that.
My doctor has also made it clear that I cannot afford to lose more blood, I am already critically low.
And more.
With every step I take now, I am so careful.
Jonathan is my chauffeur. He has also taken on all of the running around for the kids. (Which is a lot!)
It makes me feel terrible, and grateful all at the same time.
Grateful that he can and is willing to help, and terrible that I can't do it.
But I can't.
Normally I would will myself to keep going and doing,
I am just not well enough.
The need to stay as well as possible is most important now.
Jon has a lot going on at work right now, it is an important time for him and I hate to cause him more stress.
You should see the stress in his face. I wish it was about work
but I know that look, he is worried about me.
Last week he was working through some other bad news: a good friend here with terminal cancer, a dear friend in TX who is not doing well at all, an aunt in CA who is in ICU and currently struggling for life, and then my news.
Megan was asking me about everyone and getting updates when she said, "Dad is not having a very good week, is he?!"
As far as the situation with my blood loss goes, you are probably asking the questions that I have been asking of myself?
How in the world did I not know?
How in the world did I let it go so far?
I don't have a good answer for that.
Complaining of being tired isn't an option for me, everyone feels tired and so I stopped saying that I was tired many years ago.
When I have felt faint and/or light-headed and dizzy, I chalked it up to overexertion,
or once we came to CO, the high altitude. I also blamed that feeling on waiting too long to eat.
My inability to feel focused and able to make decisions I blamed on feeling a little blue after the move, and lack of sleep, pain from my back, etc.
(The inability to think quickly and make decisions easily has actually been one of the symptoms that has been the hardest for me to deal with.)
We came up with several reasons for the falls I have taken.
Other signs/symptoms have been blamed on Lupus
or my age (perimenopausal), lack of food and/or sleep,
my back issues - pain can make you feel terrible in a lot of ways...
so, that is how I didn't know.
There seemed to be an explanation for everything.
Ha! And there is an explanation, just not any that I had thought of.
The human body is amazing! The way it adapts to terrible circumstances is a wonder.